Ok, so I forgot to post on Tuesday about my neurology appointment. I was preoccupied with trying to sleep and then trying to figure out what 'Ambien Me' did with my hair brush, headphones, rescue meds, and half a jar of grape jelly. Anywho...
The eyeball stabbing came back, but it's not as bad as it was, and the dystonia seems ok. The migraines are still constant, but I'm not miserable. The fluid still pours out of my nose, and nobody's done an MRI. Still using the rescue meds, and the Zofran/Diet Coke/bucket combo. Dr.New-Neuro was pleasantly surprised that I had no side effects from the first round of injections, and wants to see me in two months for the next round. I think it's a good idea to give it a go, symptoms can take a few rounds to subside.
This is also kind of a shout out/thank you to health care workers: you guys put up with a ton of bullshit and still choose to do your damnedest to try and help people. And often times don't get thanked enough, especially those in emergency medicine. So, I try not to give you guys a hard time cuz if I don't want to deal with my crap, then I can't imagine that you would either.
It's important for me to get this out there. A few months ago, Dr.New-Neuro's office advised me to go to the ER. This never occurred to me-- I had been previously advised to just curl up with my bucket and since I wasn't bleeding profusely, I didn't think that was where I needed to be. But I went begrudgingly, and I had to go by ambulance for reasons that I won't get into. Let's just say that with my migraines I need to be near a bucket, throne, shower, and washing machine.
After a few trips, I felt like that was a major waste of time and resources for me to just be miserable when I could be miserable at home for free. I called Dr.New-Neuro's office and told them so. Then I asked to try a medication that we weren't sure I could safely take, since that's pretty much what the ER wanted to give me anyhow. Turns out I can tolerate it just fine, and got shuffled off to the ER...again.
One day when the call went out, an extra vehicle showed up with the ambulance. One of the EMTs recognized my address and wasn't even on call. He just happened to hear it on the scanner and came to make sure I was ok. I don't remember your name, but you are awesome and I want you to know that I am making progress. Seriously dude (and fellow medical professionals), THANK YOU!!!
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